I have recently been diagnosed with Lhermittes Sign/Syndrome after years of running back and fourth to G.P and Neurologist for many MRI’s etc.
I was given Amitriptyline to counter act the shock and buzzing I get on a daily basis.
One thing my G.P and Neuro did tell me was that this should not be happening on a regular basis, but it is. They said it should be something that comes and goes due to certain movements in the neck and back areas.
On my MRi id came back and said Bulging at the Lower LT region and no significant lesions found. Now this worries me, ” no significant Lesions “? why not just say no lesions?
When I questioned this with my GP they kind of brushed it off. I have been trying for a diagnosis for many years and recently got it but I feel my GP is brushing me off now as they say I have Lhermittes. now that I am diagnosed I am off their radar. I told them I did not want to take the amitriptyline due to some side affects and advice from others who have taken this.
I did query with my GP MS, but I was completely shot down on that diagnosis pretty much straight away.
But I cannot think that it is just Lhermittes I have as I am in constant pain, Headaches, Pain in my left eye all of the time, Brain fog and working at a desk daily all makes me feel a lot worse.
I also have noticed my anxiety and depression has gotten worse over time and I maybe am putting this all down to the diagnosis.
Can someone please advise me on any of this please?
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