I was diagnosed Aug 2016, with the discovery of lesions in my brain. A further lesion appeared on my 2017 scan. I recently had a further scan due to new symptoms, however this was looking at my spine aswel. The scan thankfully showed no new brain lesions since my last scan, but they have “probably” found two lesions in my spine.
Firstly, why can they not definitively identify that I have these two lesions? There are so many probablys and possiblys with this condition it does my head in! So many of my questions are answered with a maybe. It really frustrates me because it leads me to thinking I’m “maybe” making something out of nothing or going mad.
If I “probably” have these lesions what does that mean or indicate? I guess it could mean these are new lesions, which could explain the sensations I have in my foot, hand and face? I also have a numbness that I believe has spread up my back. Would this indicate why?
As they cannot compare this scan to another (as it is my first spinal scan) will they just use this as a baseline for future scans to monitor it as they cannot use it to identify any progression right now?
Would lesions in the spine indicate a factor to back pain, as this is something I suffer with, along with a permanent numbness in my left hip which has recently spread up my back.
If anyone has any similar experiences or any “possible” answers I would love to hear from you.
Thank you x
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