I’m 30 days after round 1 of Lemtrada and something is bugging me.
Spasticity has been my major problem since I started to present MS symptoms, nearly 3 years ago. It has mainly affected my knees, calves and the soles of my feet, giving me major balance problems and limiting my walking abilities.
My MS is very aggressive, so my doctor decided Lemtrada was the best option for me.
What is funny is that while I was at the hospital getting the treatment and up to 20 days after it was over, I felt my spasticity going away little by little. I thought it was weird seeing improvement so fast, but at the same time I was happy, thinking I’d get at least some of my walking ability pre MS back.
Ever since Christmas eve, this started to change. My spasticity has gotten much, much worse than it has ever been before. My calves and knees feel too rigid and I can barely feel the floor when I’m barefoot. This is limiting my walking harder than before, I’m thinking about buying a cane to give me some sense of stability.
Anyone else had the same problem with Lemtrada? Feeling the MS symptoms go away and all of a sudden coming back harder than ever? Is there any chance my spasticity will at least return to the way it used to be before? I know it varies from person to person but what should be the time frame to see improvement?
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