So as most of you know I have been waiting over a year for Lemtrada that I was promised by QE in Birmingham. I keep being told by my neurologist that my MRI and previous relapse show I’m on borrowed time of a really bad relapse, at least that’s what he believes. So far I have proved him wrong on all counts, but obviously I need treatment soon. I feel waiting a year is ridiculous now. He called. Friday and said they won’t be ready for ages so now he is referring me. I asked ages ago, contacted many people, including ms society, my local mp, various politicians and NICE to be told I’m being referred. It’s terrible, I only hope no one else is going through this mess around. It wouldn’t be so bad if my dr didn’t say he doesn’t think I have such a good chance of recovering next time due to extent of last relapse. I think I’m doing incredibly well considering yet he just puts a downer on everything. Makes me want to work in ms cause I don’t feel like any of the professionals i have seen push to help, I’m just glad I have taken things into my own hands and changed diet, researched supplements and exercise to keep myself strong. Sorry for rant it’s just getting a dad ridiculous xx
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