So as most of you know I have been waiting over a year for Lemtrada that I was promised by QE in Birmingham. I keep being told by my neurologist that my MRI and previous relapse show I’m on borrowed time of a really bad relapse, at least that’s what he believes. So far I have proved him wrong on all counts, but obviously I need treatment soon. I feel waiting a year is ridiculous now. He called. Friday and said they won’t be ready for ages so now he is referring me. I asked ages ago, contacted many people, including ms society, my local mp, various politicians and NICE to be told I’m being referred. It’s terrible, I only hope no one else is going through this mess around. It wouldn’t be so bad if my dr didn’t say he doesn’t think I have such a good chance of recovering next time due to extent of last relapse. I think I’m doing incredibly well considering yet he just puts a downer on everything. Makes me want to work in ms cause I don’t feel like any of the professionals i have seen push to help, I’m just glad I have taken things into my own hands and changed diet, researched supplements and exercise to keep myself strong. Sorry for rant it’s just getting a dad ridiculous xx
Browse categories and add by clicking on them
You can remove current categories below by clicking the ‘x’.
You must be logged in to reply to this topic.