Started Lemtrada round 2 today. Bloods and urine, then an hour of steroids, all the pre-meds then 4 hour infusion. The anti histamine made me come over a little funny and sleepy like last year but it surpassed. Kept going from boiling hot to freezing cold but no rash, just that awful metallic taste in my mouth!! Blood pressure stayed fine. Got a headache half way through so had some paracetomal and it died down within the hour. Outpatient so home in my own bed thank goodness, have slight tickly prickling on my right cheek and pins and needles worsened in my right wrist, but within myself I feel fine. Slightly weak and sluggish but overall I feel so much better than I’d imagined. Here to answer any questions, hope you’re all well! X
Last reply 2 months ago
Lem round 2!