Last reply 2 months ago
Just had a Shower, Eeekkk.

So I had a shower about 20 mins ago, no bother or any trouble at all.
Then I started drying myself off and…….. a massive wave of Fatigue, Doom and Dread suddenly washed over me from out of nowhere.

Mostly subsided now apart from it still feels like I’m carrying a Tree Trunk on the back of my neck.

I’ve had some milder experiences of this kind of thing before but, jeeeeeeez this was out of this galaxy.

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vixen
2 months ago

Hello @peterfrancis, it’s scary, right? I’m exactly the same, not TIL the point of drying…..over time, I’ve learnt the knack of getting around it. Shorter, slightly cooler showers or baths. Buy yourself a cosy towelling robe so that on the occasions it’s bad, you can put a robe on rather than dry yourself. Always tell someone when you’re in the bath so they can check you’re OK. This happened to my sister once who also has MS and she was sapped of energy and counldnt get out!

By the way, I have noticed if I’m under the weather or having a flare up, it feels much worse. Kind of exaggerated. Anyways, you’re not alone with this weirdness!


highlander
2 months ago

Hi all I can’t remember what it called but it something like lermeatts phenomenon. I’m sure @stumbler will know, you need to let yourself cool down.
It’ll go away quicker.
Don’t panic Mr mannering!


highlander
2 months ago

Hi again @peterfrancis and @vixen
It’s called usthoff phenomenon gust type phenomenon on the search box it’ll find it.


stumbler
2 months ago

Close, @highlander , it’s Uhthoff’s Phenomenon, https://www.mstrust.org.uk/a-z/uhthoffs-phenomenon. 😉


peterfrancis
2 months ago

Will have to give that a read, never heard of Uhthoff’s Phenom before.


highlander
2 months ago

@peterfrancis it’s best to leave the door unlocked when you use the bath or shower, and there is someone else In the house with you.
It’s caught me out once and my wife had to help me out the shower as my legs gave up their day job.
If your mindful of the temperature then you should be better prepared.


fxms
2 months ago

I have experienced this too. Guess it’s fairly common… #heatintolerance

“Peripheral nerve studies have shown that even a 0.5 °C increase in body temperature can slow or block the conduction of nerve impulses in demyelinated nerves. With greater levels of demyelination, a smaller increase in temperature is needed to slow down the nerve impulse conduction.”


peterfrancis
2 months ago

The first time I experienced this was not long after diagnosis and it was a lot milder than last nights events. It was more to do with the initial burst of cold water from the Shower at that time. Last nights was more of a gradual thing after Showering… then BOOM!.

So, hot or cold temperatures can b\ring on the dreaded Uhthoffs then, will have to find the Lukewarm setting.


potter
2 months ago

After my last relapse I wasn’t able to take a shower for a month. I did a sponge bath and that went okay but I didn’t like washing my hair in the sink. I finally could take a shower that was so cool I would shiver and shake. I am careful to have lukewarm showers now and I get wet and then stand outside spray of water while I shampoo or soap up. Potter

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