Been signed off from consultant, as she can do no more.
Not on any long term DMT, (SPMS), and over the last 3 months the pains have got worse.
All round my waist, like I have done 1000 sit-ups, its relentless.
Feels like I have had been through abdominal surgery.
It’s the “MS hug” on crack I think.
Anyone else get it that severe? Any answers?
Baclofen eases it slightly, but not for long.
I do straight-arm pullovers with 8kg weight, to try and tell the muscles I am still in charge, but they seem to be ignoring me!
Stiff leg muscles and the soles of my feet are on fire all the time, so much so, walking (or trying to stumble and drag), is a nightmare.
Anyone got any “Magical” treatment ideas?
Oh, and to cap it all, at night the leg spasm has got so bad I am thinking of trying to get crowd-funding for an amputation.
I think I’m joking (ha-bloody- ha), but I might not be in a few more months!
Any suggestions gratefully received.
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