Last reply 1 year ago
Increased Diastolic from Gilenya.

So after a visit to a cardiologist I was shocked at how high my diastolic was. I had a reading of 115/97, I was always optimal before the meds. The cardiologist didn’t seem to concerned over this reading and I was told to go ” Vegan” and went on my way. Now I am being told by my case manager/insurance to monitor my blood pressure throughout the day and if it gets to high to go to the doctor immediately. This is listed as a possible side effect of Gilenya so I am curious if this is common or if anyone has any differing advice on this.

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1 year ago

I have this issue, too, but as I hadn’t tested myself before I started gilenya I can’t say if the BP had started to go up earlier. I’m now on a low-dose BP med. I do know that your BP does tend to rise with age and I’ve been told to aim for max 150/90. I’ve been dieting lately and see that the BP is gradually but definitely going down. My understanding of the gilenya side effects is that it only has a small effect on BP, so maybe your rise is a combination of factors?

1 year ago

My BP has gone up since being on gilenya, it’s gotten as height as 155/117 then other times as low as 117/ 82 I’m on no no meds

1 year ago

@frankielideo , with you upcoming PIP assessment, could your stress levels be increasing? This is something which is best avoided.

1 year ago

@stumbler, I thought it was stress but I have monitored it over the last few months, it constantly high then goes low, they did a 24hr test back in aug and that was light unless I was sleeping, I refused the bp tablets as it does go low, so I may have to go on them at some point

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