Last reply 2 months ago
Incase..

Incase I was daignosed with MS mistakegly whuch I doubt it..
I took rebef avonex dr said no improvement with anything but steroid and he thought maybe if i take tysabri which I consider not an iption

And now gilenya

They think i suffer marfan instead
But what if they’re right do u think all tgese treatment might be severly hurful..

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stumbler
2 months ago

@nutshell88 , why bother looking back, you can’t change anything.

Deal with the present and look to the future. 😉


nutshell88
2 months ago

@stumbler im having heart pain thats why im slightly bit worried about this gilenya how id clear it out of my system of i ever needed to.


stumbler
2 months ago

nutshell88
2 months ago

Its not thr first time they misdiagnose


stumbler
2 months ago

@nutshell88 , it’s only your presumption that you’ve been misdiagnosed.

Why not just ask your Neuro if Marfan Syndrome has been discounted?


nutshell88
2 months ago

@stumbler its hard to book an appointment they’re always busy and he asked of copy of scan first and that professor promised me to send copy via email but he has never sent anything.


stumbler
2 months ago

@nutshell88 , these people are very busy, it seems.

Try sending them an email, or even writing them a letter, rather than requesting an appointment. After all, it’s just a straight question, “have you discounted Marfan Syndrome?”

They’ll know you’ve been consulting Doctor Google!

And, if a Doctor has promised to send you something, then chase them up if it’s not received.


nutshell88
2 months ago

You’m are right @stumbler

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