I am 25 years old and have read a few bits about being more aggressive with treatment early on in diagnosis. I was diagnosed April 2016 and have been on copaxone since Aug 2016 however it isn’t working so the doctor wants to put me on Tysabri.
I have been reading a lot about the HSCT stem cell treatment and wonder whether this or Lemtrada is the way to go?
What are other people my age taking?
Has anyone had HSCT? I am hoping to speak to Sheffield about being part of their trial.
What about Lemtrada? what actually happens during and after treatment? is it worth it?
It’s so hard trying to make a decision when all the knowledge you have is based on stuff you read on the internet. I remember how scared I was thinking about Copaxone. Now that seems so silly. For anyone about to start, Copaxone is a pain (injections 3 times a week) but personally, I had no side effects apart from site reactions which were manageable. That and the fact it wasn’t strong enough for me….
The side effects of Tysabri are daunting so I am looking into other options – Lemtrada or HSCT.
Maybe as a young and otherwise healthy 25 year old I should be going at it more aggressively. What do you think?
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