Since 2014 I’ve had a feeling that there was something not quite right with me. To get a Dr to listen to you these days and refer you to a consultant unless you pay to go private is very difficult. I have suffered with migraines most of my life and it’s taken over my life… but over the last couple of years the fatigue and the feeling of heavy limbs and aching muscles and joints have got really bad.
I have good days and bad days, at times I feel Ike I have been walking in water for hours on end and my legs are aching so much I’ve got no energy. Some days I will spend most of the day laying doe because I just don’t have the energy to do anything. The worst part of all this for me. I look a picture of health. But I feel like crap. I’m acing from head to toe. Every single miscible and bone ache so much at times I could literally cry.
I’m going to Neurophysiology on Tuesday and having my MRI brain scan on Wednesday which I’m really scared about becaus of what they might find. My head is constantly pulsating and I’ve had 34 migraines since the 28 March which I’ve recorded with an awesome little app on my phone. Some have been moderate and mild. But 68% of them have been severe migraines. I have started having cognitive problems with thinking and performing simple tasks. Recently I’ve experienced heavy hands like I’m holding weights in my hands. And the feeling of though my hands have gone dead. That feeling when you have woken up with your arm hangining out of bed and your arm is dead. There is also the case of sleep paralysis which happens now and then which is frightening as hell. Your brain is awake but your body isn’t awake.
I haven’t been officially diagnosed yet because my return appointment isn’t until July which I thought was rather long.
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