Possibly because of my background, the area of risk is of great interest. What is it, how to interpret it, relative or absolute and how to discuss it in a way that everyone is comfortable with.
With MS and, DMTs specifically, there is a great deal of misinterpretation and misunderstanding, especially when discussing risk with your treatment team, friends and family. Even when you know more about the mechanics of things it doesn’t stop emotions playing a large part, irrational or not. And no one can tell you that an emotion is wrong, that is just annoying as it doesn’t stop you feeling it. It may not be based in rationality but humans aren’t rational. Never have been, never will be!
This is a longish paper but not written in dense medicalese. It is by a risk expert in other industries coming into dealing with doctors, how they understand and communicate risk to us, the patients.
Well worth a read (yes, I am nerdy and love a good paper!) as it helps you be a better informed patient. Enjoy 😉
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