I need my ms buddies to give me the run down on what med they take. Tysabri was great I only had 1 infusion a neuro gave it to me while I was recovering from a relapse in March (he took me under his wing so to say) but I moved to Clarksville and the after effects of not having it for about three months landed me in the hospital with multiple lesions and gallbladder removal surgery. It came back to knock me down hard. Even tho my dr Is apart of the 1 touch program he doesn’t like prescribing it. Avonex caused my legs to not legs to not work not because I didn’t have strength but because vertigo had me all out of wack (I only took it 1 time as well) I see alot of things about people going all natural and they are symptom free. I’m at a drawing board with it and could use advice. I didn’t feel a change within myself on tysabri but Brian mentioned he saw improvement in my walking. I’m just scared of pml and becoming JC + and my dr. Having to take me off of it again. I don’t want all the side effects of other meds. I can deal with alot but vertigo is a hard no for me the flu like symptoms I don’t like but can deal with. This all is about to drive me mad. I’ve been studying and reading anything I can get my hands on. If it helps I take Gabapentin and hemp oil. Thinking of weaning off of the Gabapentin not because it doesn’t work. It works great but I’m afraid of becoming addicted to it unintentionally as it has been scheduled now. The nurse in the hospital was not worried about me becoming addicted and felt it truly helped in my case. But, when I didn’t take it for a few days in the hospital I was in alot of pain and had withdrawal symptoms. Ugh advice please. Pointing me in the right direction would be helpful.
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