Last reply 6 months ago
Having a third dose of Lemtrada

I had my second dose of Lemtrada last June. My neurologist has explained that a 3rd dose of Lemtrada is available, only if the first 2 doses haven’t fully dampened the MS or there is new activity.

I think I’m experiencing a new relapse. The only silver lining is that it’s a relatively small relapse. I was just wondering what are the NICE guidelines for me to be eligible for a third course of Lemtrada. I can imagine my neurologist telling me that I can’t have a third course due to x,u or z reason. Hence I need to know how i go about demanding a 3rd course. Has anyone had a third course? Or has anyone even gone from Lemtrada to another treatment? What is the eligibility criteria for Ocrevus?

Thanks

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


tracyd
6 months ago

Ocrevus once fully licensed here should be the same as Lemtrada / Tysabri / Tecfidera.

The instant of heart problems with Ocrevus have put it right at the back of my ‘shit I’ll try next list’.

My order of preference for future (if at all needed) is as follows

Lemtrada
Cladrabine (off book injectable type NOT Mavenclad)
HSCT (done in Mexico because the food is better than Moscow, it’s warmer, Russians don’t like us much right now and risk of septicaemia is 7% over there compared to nearly 70% here in the UK on the NHS)
Anything that comes along in the interim
Ocrevus


lemtrada-uk
6 months ago

Hi tracy.

I remember speaking to you prior to beginning my first course of Lemtrada – I Hope you’re well.

Did you need a third course of Lemtrada? Do you know what the guidelines are to be eligible for a third course?

Thanks


tracyd
6 months ago

@lemtrada-uk

I don’t need another I’m nearly 3 years NEDA now and loving life.

Both Berkshire and Hampshire NHS are adamant that they do not provide a 3rd round of Lemtrada

That said a cost benefit analysis of it proves that for those it succeeds for a 3rd round would be the most cost effective


curious-one
6 months ago

@tracyd

Why cladribine and not mavenclad?


tracyd
6 months ago

@curious-one

A few reasons ….

An injection once every month or 3 verses remembering to take a tablet every day – injection wins

A well known injection that’s been in use for donkeys years verses a new shiny tabletised form of the drug which doesn’t have a established history – injection wins

The injection costs pence and the tablet costs thousands – injection wins

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.