Last reply 1 year ago
Has anyone been on Rituxin i think thats

I think that is the name of it. You go one week for one appointment lasting about 5 hours and you go back a week later for another one and then once every 4 or 6 months??? I was curious to know if anyone is on it and what side affects do you have and were you worried about the chances of developing PML the brain infection?? I’m 28 with 3 children ages 7,4,and 10 months. I don’t know if I want to risk a brain infection, id rather have chances of being in a wheelchair then not watching my kids grow up.

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stumbler
1 year ago

@whitneyjones , Rituximab isn’t a mainstream Disease Modifying Treatment (DMT) in the UK, but there are details of it here:-

https://www.mssociety.org.uk/ms-research/treatments-in-the-pipeline/rituximab

All DMTs come with risks, but these risks are acknowledged, so monitoring takes place to ensure that these risks are maintained at acceptable levels. If these risk indicators rise above these levels, the DMT will be stopped/reviewed.

Crossing a road comes with risks, but monitoring (keeping your eyes open) keeps these risks at acceptable levels!

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