Last reply 1 year ago
For those of you curious of my OCREVOUS

Well. . . i had my second infusion on 2/16
And it was great everything went fine! They did change the Benadryl for me instead for the pills they gave me (what looked to me in the syringe to be a good bit of) liquid benadryl.
I didn’t break out in red blotches or get itchy,
The rapid heart beat i had trouble with last time with last time wasnt bad at all!! Totally tolerable almost wanna say HELPED give me a lil energy. Nd i kinda wanna say i feel like the past two times the day after my infusion i do have a kinda burst of energy!!
So heres an update of my second round for those of you who wantes to be updated about my experience!☺❤

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1 year ago


Thank you for offering to be a sounding board; glad things are working out. A few questions from a Canadian PPMS if I may…

1) I was told by my Neurologist that Ocrevous has a 50% success ration. He never mentioned what success was – what is occurring with you physically?

2) After two rounds, what are their plans for you from today?

I meet my Neurologist in two weeks & would like to be informed. Thanks!


1 year ago

Hi there, thanks so much for the update. Glad it’s going well for you, enjoy the burst of energy. Future updates most welcome 🙂

1 year ago

Well done, you. I’m glad it’s going well.

Good luck for the future.

Best wishes,


1 year ago


1 year ago

I had my first round with Ocrevus this week. Like Monica all went very well, and I too feel much better – more energy, the brain fog has lifted (I can do things at work much more efficiently) and my gait has improved.

I have early stage RRMS – I was diagnosed formally in October last year – and am having Ocrevus in the UK as part of an open-label trial.

I know the power of the placebo effect, and they did also give me a small infusion of steroids, so let’s not count these gains as ‘locked-in.’ So far, though, these last couple of days have been the most normal I have felt for twelve months.


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