Last reply 5 days ago
Foot drop and FES

Hi all,

My sister is on her second week of trialling a FES machine. We are on holiday and basically, it’s meant the difference between her being able to walk and come out with everyone, and not being able to walk and staying home. It’s hard work but totally, totally liberating.

Does anyone know of any centres in the U.K. where you can purchase or rent one from? The consultations that go along with the one she has are only available privately which significantly adds to the cost. Thanks guys

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vivien
1 week ago

What is an FES machine? I’m relatively new to MS, only dxd 8 months ago.


vixen
1 week ago

Hi @vivien, for people with foot drop, it’s a kind of strap with electrodes on which literally lifts the foot up and enables ‘normal’ walking. If it works, it’s a game changer. They cost £5000 although they are available through the NHS with a huge waiting list….


condansmum
1 week ago

Hi vixen
FES are not available on the NHS in Scotland but you can get a grant from the MS Society to help with the cost. I’m not sure about England. My physio let me try one- it was amazing but the wires and electrodes kept coming off and it was really frustrating! After lots of research from my hubby we bit the bullet and bought a wireless one( god bless visa!) and it’s great. It’s called an Xft 2001d and it cost £1400. I know it’s a lot but they can be much more expensive. Google it. It’s a godsend to me🙂
Hope that helps!
Anna x


vixen
1 week ago

vixen
1 week ago

numptydumpty
1 week ago

Don’t know where you are but I live in Edinburgh and got a fes through the neuro physio service in the NHS at astlie ainslie. I use it all the time, with fitting it just being a bit of the daily routine. I originally had regular reviews to make sure I was using correctly but now just left to it. The NHS also provide replacement electrodes/cables etc as needed. The only things I supply are batteries and dodgy legs.


condansmum
1 week ago

Hi numptydumpty
Apologies I didn’t know you could get it in Edinburgh. I’m in Lanarkshire and it’s not provided here. Even though loads of us have it here!
Anna x


stumbler
1 week ago

@vixen , you may be able to locate the nearest FES Centre using this map :-

https://www.mstrust.org.uk/about-ms/ms-services-near-me

Don’t give up on the NHS. Make a fuss, make a noise, keep on knocking on their door, get your local MP onside, etc, etc


iris
5 days ago

hi vixen interested to read your post on foot drop because i have it on my left foot. have tried various velcro contraptions. These work brilliantly in the surgery but by the time i make outside to the car park, my ankle is itching so badly that i have had to rip them off by the time i get into the car. eventually i end up sending it back because i simply cannot bear it. the physio mentioned the fes but i am reluctant because of the previous problem. i have arch supports , brilliant for getting about the house and two sticks for outside but a manual wheelchair and mobility scooter for longer distances. would i benefit from a fes do you think?


vixen
5 days ago

Hello @iris. Maybe you could use the link supplied by @stumbler above and look at where your nearest centres are, then give it a go. My sister has found it really hard to adjust to using it; it kind of rewires the way your leg functions so it’s very complex. But she has persevered and it’s enabled her to walk unaided. If your physio has mentioned it, maybe you could give it a go? The first time it was strapped on her calf, it literally lifted her foot up and was amazing!


rea
5 days ago

Hello,
I’ve had my FES for 2 yrs; total game changer and I couldn’t be without it.
I initially asked my MS nurse for a referral for this; there is a specialist NHS rehab unit about 15 miles from me ( NE England) and funding was approved, after appeal, by my local PCT. All supplies are ordered via my GP sugery, except batteries.
I understand it is a bit of a lottery with regards to funding but the MS Society have loads of information on this. It helps to get your neuro & Gp on board too. My physio did all the application etc.
All units are provided by Odstock medical – odstockmedical.com

Good luck.


iris
5 days ago

thank you for getting back vixen. will reconsider but my problem is the velcro allergy in the attachments…….if i didn’t have that………… used to do Ceroc but cant do the turns now, can still manage Argentine tango because the movements do not cover great lengths of space and you can control which movements you do. the effort for it is becoming increasingly difficult hence the fes thing as my physio suggested …. i don’t know still. Maybe it will be until i can do nothing at all needs must and worth a £5000 trial maybe free if that is my stage then. many thanks anyway

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