matus82 09/02/18
Last reply 4 months ago
follow up update

Hello,
so I have been to see my neurologist yesterday after having a 6 month MRI follow up. according to the neuro no new activity so far…. all good.
here is a quick run up to what I am dealing with:
in June 2017 had MRI done and found 6 non active lesions on my Brain
in July 2017 had MRI of my spine and spinal tap done. Nothing found and all clear.
Feb 2018 had a follow up MRI of the brain and neck and nothing new found.
My neuro is considering this to be a isolated syndrome and wants me to go for a follow up in 6 months.

here are some of the issues I am dealing with for a number of months already (since mid 2017):
bladder and bowel problems (frequent urination and constipation) – been to urologist and nothing found to be of concern. Gastro also checked me out and I have acid reflux… still does not explain the bladder.
tingling sensation in my hands when I wake up maybe 2x a week (lasting max a minute)
sometimes random muscle spasms that last 1-2 minutes
in the last month having a mild eye pain during the day ( no vision distortion )
lately noticed a very very mild stiffness in my legs, does not influence my balance or daily activities.

Considered all the above, I am tempted to ask my neuro about a spinal MRI as well, since right now I have only confirmation that the brain and neck is good on a follow up. (spine never had anything before).

sometimes when i have dark thoughts I am wondering if there is no chance I am developing a Primary progressive, since i am not having any specific relapses that I can identify. ( I guess this is maybe a little far fetched, but this thought came over my mind too yet neuro sees me as a non confirmed MS), and I am seeing the above symptoms…all my symptoms are rather mild.

my current adjustments:
daily
8000ui vitamin D
vitamin E
Flaxseed oil
omega 3
magnesium, calcium selenium supplements
daily exercise
and starting OMS diet

Thanks for any feedback in advance

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stumbler
4 months ago

@matus82 , Neuros are very reticent is providing a diagnosis of MS until they can be absolutely sure.

The problems that you are experiencing may be residual damage from the non-active lesions from mid-2017.

Incontinence problems are a common symptom, as are sensory symptoms. There’s some information on these symptoms here :-

https://www.mstrust.org.uk/a-z/incontinence
https://www.mstrust.org.uk/a-z/altered-sensations

Problems like these are different for all of us and unpredictable. Your Neuro is regularly monitoring you so is keeping a close eye on the situation. A full MRI, brain and spine, at the next review may be pertinent.

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