I have now got my first proper appt for the MS Nurse next Wednesday. (which happens to be at exactly the same time as my OH has his prostate biopsy- such fun !!, luckily we will both be sitting in the same waiting area, LOL)
I would like to ask people what questions they covered at their first appointment. I realise that these appointments are precious time and I don’t want to waste the Nurse’s time.
I have the literature, but its the individual questions I am interested in.
I will be starting Tecfidera in the new year – assuming that my recent blood results are satisfactory.
What support to I have a right to request?
*A bit of back ground*.
I have a dreadful dietary pattern – I HATE eating breakfast, it make me feel quite sick. I tend not to eat lunch either. Often if i am going out then I can skip the evening meal.
However, when I do eat its plenty of homemade fresh, often homegrown fruit,veg and meat (home produced pork and lamb). I can NOT eat plastic foods, ie, fake butters, fake yoghurts, over processed cheeses, anything with sweeteners in it.
I have a very active lifestyle, 2 horses, 2 dogs, cats, hens, occasionally sheep and pigs, felting and other arts/crafts, working (Nurse), play fiddle out several nights a week. The kids are grown up.
My sleep patterns are all over the place, after years of doing night shifts. I have recently been working day shifts to try address this issue, and try to be home by 1 am when out playing music.
I don’t really drink alcohol- well lets say a couple of drams a month.
I do smoke- and do use the puffers to control this
I am a tad overweight.
I don’t get stressed, or particularly anxious about things. One could say, I am quite pragmatic about dealing with crises – that’s the Nurse training, and a lifetime of animals throwing major emergencies my way!!
Oh dear, reading all that- I am a disaster.. 😉 Big lifestyle changes will have to happen..
thanks for any help
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