Hi, I’ve been diagnosed with MS since February. A letter from the hospital says it’s mild MS. Probably is too, I have no pain and have no real mobility issues apart from dizziness.
My real issue is my brain. I haven’t felt fully myself since my relapse. I call it my hole in the head. Can’t concentrate, can’t make plans, couldn’t read for a few months, still have difficulties with that when fatigued.
I told my neurologist all this on my first visit. He didn’t seem too worried, and reckoned I’d be fine after about a year. Fair enough, I’ll soldier on.
Had a second visit the other day. My neurologist seemed surprised I was having these difficulties. I said, I’ve told you all this before… I mentioned the year to feel better comment from last time, and that seemed to be brushed over hurriedly. He then said, well there’s nothing on your scans to suggest you should be having these problems! So I’m going back in 6 months and I might have an MRI then if I’m still having problems.
I’m well pissed off, to put it mildly. I mean, why wasn’t I told on the first visit my scans didn’t indicate problems? Why was the year to get better not really talked about? I’m aware my physical problems are relatively minor, but my head problems definitely aren’t (in my opinion) I don’t drive, but I wouldn’t consider myself safe to drive, I am literally a danger to myself crossing the road, never mind driving on it.
Sorry for the rant, I have no idea what to do next. Do I just grin and bear it or see someone else?
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