Last reply 3 years ago
End of a long relapse..???

Hi all , I’ve been having my relapse for just over a year now (started Sept 2013) and was diagnosed with RRMS end of April (and then SPMS a month later..??). I spoke to the Neuro about why it was unclear as to which MS I had actually got and she just advised that time would tell for me that if I recovered then it’s RRMS and if I didn’t then it’s SPMS… 🙁 so I’ve been having Neurophysio for the last 5 weeks and it is helping a lot with my balance and gait (was showing off last week wobbling in an almost straight line without my stick.. 🙂 ) Physio very pleased with progress and so am I but I have started to wonder if I’m coming to the end of this very long relapse naturally and that’s why I feel stronger.. Don’t get me wrong I am still struggling with balance, stairs, walking outside, fatigue and a slight numbness in my left side still but all in all I feel more able at the mo (Touching wood as I type.. :-/ ). Has anyone else experienced such a long relapse and come out the other end feeling “Normal” ..?? My last major relapse was 20 years ago and it also took over a year to recover fully.. so I’m hoping for the same this time.. 🙂 Best wishes y’all.

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northernlass
3 years ago

And forgot to say hope you have a great Bonfire Night (Uk’s excuse to set fire to some money.. 🙂 )

Doesn’t help you much but just keep your chin up and stay positive sounds like you are doing extremely well. Best of luck x


stumbler
3 years ago

@northernlass , the problem with relapses is that we may need to have to recover some lost function.

This sounds like what the Neuro-physio is doing for you now. Now, if you’d had this assistance about 9 months ago, then you’d might be having a diagnosis of Relapsing/Remitting, with the range of DMDs being made available to you.

I find this specification process of MS type to be very subjective on occasions.

But, you’re doing well at the moment and that’s the main thing.


cameron
3 years ago

I had fixed disability almost from day one, but was dxd as RRMS. TBH I never felt that my leg would get any better – it was so damaged, but the other bits and pieces did go away. We’re all different! Neuro physios are the best!!

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