Last reply 1 year ago
Dreading Monday


It’s been a while but thought I should ask for thoughts, hopefully positive onesies having one of those moments.

I have an appointment with Eye Specialist tomorrow for annual check up. Prior to MS I had these as I have disc drusen and pseudopapilledema. Now I also have Nystagmus in my left eye through MS. When I have mentioned Nystagmus to people I have received negative feedback and some have been surprised that 1) I still work full time and 2) still drive legally.

A couple of years ago I left my normal opticians practice after the optician I saw left me feeling useless! I moved to a different practice and the optician there has been very good and also left me feeling a little better.

Does anyone else have Nystagmus and although things may have changed can provide some comfort that I am not useless yet!


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1 year ago

I had nystagmus last year – felt like I was on a boat for weeks but it did clear up. I carried on working but didn’t drive during this time as it didn’t feel safe to me. Hope yours goes away too!

1 year ago

Thank you for replying. I have had the Nystagmus for a while so it’s a permanent feature now. I just hope medical science moves forward to find something to help.

1 year ago

Yes, I too sometimes have nystagmus. The subtitles on the tv bounce up & down a bit. I haven’t driven for years, but YOU are not ms or anything else. My big one is trigeminal neuralgia, which has needed a nerve block & a fair amount of the drug carbemazapine to keep it under control. All of us have one or many problems, chin up!

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