Last reply 5 months ago
Does hstc stops ms progression?

Hi i am seeing some people posting on facebook hstc stops spms. I thought it did not. Can someone share scientific link. Thanks

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seanachai
5 months ago

It works on all MS sub-types but is most successful on RRMS.

Like everything, not a 100% success, best case 80% for RRMS, 70% for S/PPMS; best case depends on lot of things, age, EDSS, activity, health, etc.

I sent a published trial a while back if you search…..


stumbler
5 months ago

mmhhpp
5 months ago

Thanks @stumbler and @seanachai

A bit confused stumbler because i though from that paper people still had active lessions being rrms? A shame these treatments are not yet crystal clear who can cannot have them…


seanachai
5 months ago

criteria for HSCT on NHS in UK is here…

http://multiple-sclerosis-research.blogspot.com/2016/01/london-ms-ahsct-collaborative-group.html

as you know a lot of progressive sub-types don’t present obvious inflammation which means a lot of people are screwed for treatment on NHS UK, which is a right pain in the Ts…

You have to go abroad for treatment, which costs min $60K….

Some people with no active lesion or positive LP have been accepted for different reasons, you right its a little vague in the UK

Generally from what I read on the main FB groups and people who have been assessed if you don’t meet the following

Inflammatory active MS as defined by ≥1 Gd+ (>3mm) lesion (off steroids for one month) or ≥2 new T2 lesions in MRI within last 12 months

For PPMS, CSF OCB+

chances of acceptance are highly unlikely…

with respect to the other criteria, seems to be a little more flexibility

these FB groups are useful

https://www.facebook.com/groups/hsctppms/

https://www.facebook.com/groups/ukhsct/

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