Last reply 4 years ago
Neurologists. Good and bad?

I have just seen my neurologist and because i have never had a relapse he will not put me on any medication.
My MS is slowly getting worse. I have had it for 25 years.
The rule is you have to have had 2 relapses in 1 year before anything happens.

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wilf
4 years ago

That’s true, they have set guidelines and criteria to follow and are not allowed to give DMDs unless the patient meets them.


graham100
4 years ago

This was my ms nurses reply to when am i going to take the oral DMD instead of copaxone. (Well we did try!! But found the whole process very trying!!) asked about lemtrada? Didn’t even get a reply. Bet jack Osborn don’t have these problems.??


stumbler
4 years ago

Sorry, guys, I tend to agree with the Neuros on this. If there is no clinical evidence of relapses, then there is no point in prescribing a treatment which will reduce the frequency and severity of relapses!

Yes, having a progressive variant of this condition is a pain in the butt. They are looking at treatments for us (http://www.progressivemsalliance.org/), as we are a presently untapped resource of further income for the big pharmas


stumbler
4 years ago

They’re trying for us:- http://youtu.be/IakMv1ir0R4

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