It’s been a whirlwind…
August 2015….Mother is numb down her left side, I take her to the GP as it’s weird. She’s diagnosed with MS after a couple of weeks (what is this thing, we have no idea, quick google, oh right great)
March 2016….We all go on a family holiday and after a swim I’m numb down my left side. I’m in the military, Royal Navy and happy to ignore but after a few weeks of no improvement and an imminent deployment I thought well lets go make a young military medical assistants day with some weird numbness.
March 2017….Shift on a year….2 spine MRI’s, 1 head MRI, multiplie lesions, numbness on the left that recovered, shooting pain in face that recovered and BANG 1 week before my wedding I’m diagnosed with RRMS!
I’m a serving military 26 year old, used to cracking on and having a plan for my life. Despite the lesions, symptoms and diagnosis I still feel like I did 5 years ago (albeit a bit older!)
My husband is also serving military so time to plan to have/try to have children and have treatment is limited.
I have a couple of broad questions that I’d love to open to the floor….
We’re between discussing Lemtrada and Techfidera with my Neuro Consultant (Bristol) is it too soon to go for the hard stuff based on my lack (thankfully) of symptoms or should we just crack on, put off children for 2 years and go for lemtrada (if consultant approved)?
With lemtrada how much home support is needed? My husband is about to deploy for 6 months…if I started treatment would I be moving back home with my parents?! Closest family is them at 2.5 hours drive away.
I would massively appreciate any help. We don’t even know where to start. There is probably a lot of things we haven’t even thought of 😉
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