Any thoughts / guidance on the following would be gratefully appreciated:
I was diagnosed a couple of years ago with RRMS. I wen’t on Tecfidera for 11 months but had terrible stomach cramps, continued weight loss and had borderline lymphs each month. Therefore I stopped taking them and been off them for 6 months. I have felt great and pleased to have stopped.
Today I had my appointment with the neuro where for the first time I asked her to fully explain my three scans. I had buried my head in the sand on this up to now! My last scan was a year ago which showed new lesions (including one in the spine) and she said it was moderately progressive. The next bit confused me as she stated that there are differing thoughts about MS, one being new lesions are bad and need to be slowed down, the other being it is less about the lesions and more about how you are feeling. Does anyone else understand this? The more lesions you get, the closer you are getting to disability, right?
Anyway, I am due another scan shortly, but finding out that I had progressed a little prior to Tecfidera has made me think I should go back on Meds. I have been offered Aubagio, but loving life off meds and following the OMS diet, high strength vitamin D, reflexology, exercise etc. Particularly around concerns about liver etc. I am also trying to change career as I am currently a Deputy Headteacher and I have been told whilst I might feel ok, any stress is BAD!
Please do let me know if you have any thoughts on this.
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