Last reply 1 month ago
Day one Lemtrada

So day ones had a few bumps everything fine till only 60 mls left to take n my heart rate just shot right up so doc decided just to take me off it. They think it might have been the steroids made it increase. Here’s hoping day 2 goes better tomorrow hopefully I get some sleep here xxx

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lacemister
4 months ago

Hey Zarah your in safe hands hope you do sleep well. Tomorrow’s a new day 👍


zarah
4 months ago

Other than my heart rate it’s been plain sailing no headaches itchy ness so hopefully all good from now xxx


lacemister
4 months ago

That’s really is great news and great atttitude !!!!


zarah
4 months ago

Smashed day 2 not just put a dent in it everything was plain sailing today xxx


lacemister
4 months ago

Thanks for the update …. this is so positive more of the same tomorrow !!!


zarah
4 months ago

Another great day plain sailing heart rate is at normal been listening to music all day so think that’s help to calm me. Only 2 more days to go n still no side effects 😄 xxx


highlander
4 months ago

Good stuff !!
Keep smiling


lacemister
4 months ago

Brilliant news ….. nearly done ✅.


zarah
4 months ago

Day 4 done only one to go going smoothly since the wee hiccup on Monday xxx


highlander
4 months ago

Top Banana!
On the final the 100m now to the finnish line.
Keep smiling


lacemister
4 months ago

Good stuff. !


zarah
4 months ago

Not going to lie day 5 has started tough completely wiped out steroid crash is setting in just needing to push through xxxx


highlander
4 months ago

You’ll get through it!
Not long now and you’ll soon be back home!
Keep smiling
You can do it!


stumbler
4 months ago

@zarah, you’re aware of the reason behind your downturn, so you know that you’ll soon be back up again.

So, one day to go and the rest of your life can start. Good luck.


zarah
4 months ago

Just wasn’t expecting the steroid crash to happen so soon @stumbler but have to say it’s went smoothly after the wee hiccup on Monday no rashes itchiness or side effects so a lot of positives xxx


lacemister
4 months ago

Way ta go Zarah !!! And thanks for sharing you week of treatment experience . Enjoy being home with the family , rest and please update on progress.
👍👍👍


highlander
1 month ago

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