Last reply 1 year ago

Heya Peeps.
I wondered as there’s alot of new msers here if any of you take Dantrolene/Dantrium for clonus?

I did ask b4 around 9/10mnths ago’ish but i don’t think there was anyone one it.

Cheers Lisa 😊 xx

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1 year ago

Hi @cherish , how are you?

I do not have any personal experience of this drug, but found this :-

The bits that may concern you are :-

  • if you are older than 35 years old (farbeit for me to ask a lady her age!); and
  • if you are taking any medicines for mental or mood problems; and
  • Check with your doctor before you drink alcohol or use medicines that may cause drowsiness (eg, sleep aids, muscle relaxers) while you are using Dantrium; it may add to their effects. Ask your pharmacist if you have questions about which medicines may cause drowsiness.

Baclofen is the usual muscle relaxant of choice. Has this been tried?

1 year ago

Good morning to you Mr @stumbler 😘

I do hope you are well or wellish?

I was on baclofen for 7yrs and i think it kinda done its duty then gave up.
I’ve now been on dantrolene for 9/10mnths and its a pesky bugger of a tablet. Constantly get Lfts as i think that’s the only thing that is worrying about it.

So, im still getting fairly bad clonus but tbh its less frequent than before, but when it comes i can’t move as my legs fold in on walking then kick out on resting.

So I’ve now to top it up with Valium.

I just can’t find anyone that takes it.
So it leaves me wondering why he thinks its a drug for me but no one else.

John, im maybe the special one 😂😂😂

1 year ago

PS….. Ask my age if you like

Im 27


1 year ago

@cherish , that’s the problem with muscle relaxants, they can leave your legs weak for standing/walking.

You’re probably on it as the Baclofen had become ineffective. Whether it is the right one for a “27 year old” is questionable and your Doctor should be asked.

We’ve probably been through this before, but have you tried stretching exercises? Dare I say that Yoga may be beneficial.

1 year ago

I do stand as much as possible and lift my toes (heels on ground) but it aint half difficult of late.

I went back to the 5rs group in Aberdeen for 10 more weeks and we done Pilate’s, yoga etc each week, even a bit of tai chi 😂

I find it so hard to relax enough to see benefits from it.

I think i asked about dantrolene today as im still not convinced its the correct drug for the clonus.

Im sure there could be others i could be tried on? Have neuro next week anyway, I’ll ask.

Wish i was 27, i could run marathons and go kayaking, work full time etc. 😂😂 xx

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