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highlander
1 week ago

@alesia_poilova_madni
Well as you know our/your brain and spine has had the nerves damaged through MS.
So your brain gets the wrong messages at times, thinks your cold or hot kinda gets all confused.
If you’re still not happy speak to your GP or med team just to be sure.
Keep smiling😃

Thank u


arya
1 week ago

Omg, I have the same problem. It’s not only my hands, but also my feet and nose. Do you become blue/cyanotic too?

Ohh not only mine,thanks God haha.Its not became blue but they r very cold,feets as well but more hands.


jane_watts
5 days ago

@alesia_poilova_madni

Ohhh yes, cold hands, cold feet, cold lower legs, my hands get exceptionally cold. I can end up shaking like a leaf too especially through the cold months brrrrr.
You’ve a great attitude to these symptoms well done ! 😊

Me too. Shaking like leaf. Sometimes getting tired of cold special in cold monts. But have another problem after winter,when hot weater is coming. When I feel hot my legs getting week. Is it for u the same?


highlander
5 days ago

@alesia_poilova_madni
Search for this on the ms trust site.
Uhthoff’s phenomenon | MS Trust
It’ll give you some good advice and explain a few things.
Hope it helps you out, it certainly did for me.


jane_watts
4 days ago

@alesia_poilova_madni

Yes Alesia, as much as we prefer warmer weather (I hate cold months) I find my legs too can become weak, a tiny bit harder to move, but…..
Do you stretch?
I do & it really is good too. There is benefit for the complete body. 😊

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