gates1989 23/03/18
Last reply 1 month ago
cant find the post I was looking for…

So I’m 2 months post R2 – and all my old symptoms have flared up! And I remember there being a post about someone being told this is normal, I really wanted to read it! Can anyone help? Xx

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polensara
1 month ago

Hello,

I don’t know who posted that but I confirm it’s definitely normal.which means that area in your brain hasn’t recovered fully 🙂 hope this helps 🙂 xx


gates1989
1 month ago

@polensara thank you x


imbarca
1 month ago

@gates1989 I had exactly the same as @polensara. Lemtrada causes massive inflammation. If it wasn’t for the steroids, it would make us feel really awful and have a flare of old symptoms, just like getting sick can, only much, much worse. By 2 months the effects of the steroids have really worn off, but it’s likely that some inflammation remains making you feel rubbish.

Hang in there, it took me a while to feel better and I can full remember that horrible “what have I done, I’ve made it worse, it hasn’t worked” anxiety. I blame steroid withdrawal 😀

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