Last reply 1 year ago
Best Medication…..

Good Morning!!! I am new to this community…..How is everyone doing….Getting right to the point….I was an English Teacher with Chicago Public Schools. Upon being
diagnosed with RELAPSING/REMITTING MULTIPLE SCLEROSIS, my life changed…. I was released from Chicago Public Schools. I am on Social Security Disability. I have been released from my regular Blue Cross Blue Shied Insurance Plan. I now receive Medicaid. Unfortunately, my medication has changed from REBIF to COPAXONE. I have been having a horrible time;walking and vision. It seems that I am deteriorating!!! Do I need another medication??? I NEED HELP??? PLEASE, IF SOMEONE CAN TELL ME WHAT MEDICATION MIGHT ASSIST ME IN FEELING ,BETTER!!! HELP,PLEASE…….THANK YOU!!!

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1 year ago

Hi @toiling and welcome.

Both Rebif and Copaxone are considered first line Disease Modifying Treatments (DMTs). If you are still relapsing then a more aggressive treatment needs to be considered.

There’s a range of DMTs now available including oral and infusion treatments.

It’s best to discuss with your Neuro to see what is available and what is achievable.

1 year ago

You can ask your Dr. about Lemtrada.

1 year ago

Unfortunatelly the drugs out there are disease modifying ones. I am on gilenya and after 4 years on it i started going down…..lemtrada seems to be the strongest, people on it and your Dr may advise you on it…

1 year ago

I’ve been on Tysabri for almost 6 years now. I believe it has worked beautifully for me. I’ve had no side effects with the monthly infusions. No major exacerbations! I’m JCV negative, so I don’t really worry to much about PML.
I’ve been on Copaxone, Rebif and Navantron. My MRIs over the last 6 years have shown no new lesions, I had 15 when I started on Tysabri. I had a medi port implanted to make the monthly infusion easier. The infusion are extremely easy. I’m there for 2 1/2 hours were I can nap, read or be on my iPad, I have even watched movies. It’s also great to be able to talk to other patients. I kinda think of it as a little”me” time. I was even extremely sick in 2013 with c-diff, 4 months hospitalized and 5 surgeries. My neurologist believes if I hadn’t been on Tysabri at the time I probably would have had one, the stress alone from that ordeal would have caused a major flare. I’m so thankful to Biogen for all their help

Since it seems like you are in the US consider asking about Ocrevus. It is now available but I am not sure what the insurance situation will be short term. It could be the most effective for the amount of risk. My wife is using Tecfidera right now.

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