laurenxox 17/03/17
Last reply 1 year ago
Any help?

Hey guys i feel like i am going round in circles i have been havening issues with numbness pain not being able to walk pains forgetful my dr said she thinks it may be ms so i have had a mri but nothing has show up i just dont know what to do my balance has been going lately and i feel so drained im 25 and this is majorly effecting my everyday life but im no closer to any answers is there any test that i can ask for from my dr to define if i actually have ms so i cant start some treatment i just dont know what to do any advise would be most apricated thankyou x

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stumbler
1 year ago

Hi @laurenxox and welcome .

It was good of your Doctor to order the MRI and give you his “best guess” at a diagnosis. However, diagnosing MS is the responsibility of a Neurologist, who will assess the clinical history against a physical examination and the results of the MRI.

So, it’s a good idea to compile a short list of unexplained symptoms which you can give to a Neurologist.

It’s a difficult business to diagnose MS and there are specific criteria (https://www.mstrust.org.uk/a-z/mcdonald-criteria) that you have to meet before a diagnosis can be given.

I would say that the symptoms of MS do present in various other conditions too, from a simple vitamin deficiency forwards. But, a Neurologist is best placed to solve this jigsaw.

So, get back to your GP and insist on a referral to a Neurologist.

In the meantime, just try and relax and chill out. Getting yourself stressed up is very counter-productive with neurological conditions.

Hope this helps.


ashia2013
1 year ago

Hey Lauren, even if you had an MRI and the doctor said that it definitely showed lesions (as mine did) they can’t confirm an MS diagnosis without performing a lumber puncture. They look for oligoclonal bands in the spinal fluid. These are secreted during the process of demyelination that occurrs in MS. They didn’t tell me I had MS just on the basis of just my MRI, the fact that my big sister has MS, my twin Lupus and Addison’s disease; clearly showing a strong history of autoimmune disease. There are many illness that mimic the symptoms of MS so they have to be 100% sure before they give you the diagnosis. It is an earth shattering day being told you have MS. I get that in some instances having an answer is better than no answer but you want them to be 1000% sure before they give you the diagnosis. Imagine if they gave you the wrong one! They’d be in for a law suit! This actually happened to my twin sister… she was told she had thorid cancer instead of Lupus and she was deeply traumatised. If you need definitive confirmation a lumber puncture is definitely a step in the right direction. No one wants you to end up being diagnosed incorrectly. Hope they help you find an answer x


californiadreamin
1 year ago

@laurenxox I think @stumbler has the right advice for you. I personally think a trained MS Neurologist can see things in an MRI that a regular GP might not. Our MS specialist stared at the MRI with us for 20-30 minutes. Not sure how they do it in your area, but I had cd’s cut of my wifes MRI and then we took it with us to the MS specialist (switching from a general neurologist). That being said they both reached the same conclusions, though each had some slightly different commentary.

You have neurological symptons, I would not stop till you saw a specialist. Lastly I would get familar with MS and start becoming aware of your options both lifestyle and DMT’s. There are a lot of good posts on that. In risk of sounding like a salesman I would start with overcomingms.org just to get familar (not to worried about the salesman part since its all free).


red-suzuki
1 year ago

Hiya @laurenxox.

Maybe, just maybe…like a few here you are getting those early signs, we can relate to…(kind of ‘well that make sense now’)….as a lot will contest to… I am 57 & was DX’d at 52….though looking back I had things happen in my 20;s,30’s,40’s that made no sense, which in days or weeks just went away…..vertigo’s, left eye getting foggy and so on, was dancing, doing AM Dram, playing squash & tennis, walking, cycling, Motorcycling etc……Theres a lot of good advice from folk above, its best to keep de-stressed & relaxed as possible….Get that Neurologist, they know there stuff…

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