Last reply 1 year ago
Anxiety and doubt

My anxiety got to me again and I started googling similarities and differences between MS and ALS it’s scared the crap out of me they’re really similar and I’m only 3 years into my diagnosis pretty scary ?

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potter
1 year ago

I have had nine members of my family die of ALS and two of MS. When I was diagnosed with MS I asked my neuro about getting diagnosed with ALS also later. He said he had never heard it, highly improbable. All of my relatives that were diagnosed with ALS were 60 years old at the time, they all had passed away by the time they were 64. I am 64 and haven’t had any signs of ALS, I have a sister who is showing signs of it but is in denial. One of my aunts lived with MS for 40 years and was still just using a cane when she died, she was 75 years old and died of a blood disease. I can’t see why you couldn’t live longer than that, there is such good treatments available now, she had nothing. Reading Dr. Google and freaking yourself out can cause old lesions to flare. If anyone should be freaked out it should be me, you can ask anyone on the forum, I am always calm and reasonable. Potter


doubleo7hud
1 year ago

Better to ask on shift mate people here that have actually got ms it’s amazing. No need to worry “it be reet” your still here just be thankful and stay off google. find something to focus on other than being ill and set yourself some goals while you await your diagnosis patiently. If you need anything ask here there’s loads of helpful folk here that are all in the same boat. Take it easy, peace out,


diegomontes16
1 year ago

Thanks guys I appreciate it


rhymenocerous
1 year ago

Hi @diegomontes16, I can reassure you that if you’ve been diagnosed with MS, you’ll have MS and not ALS. Although the symptoms can be similar, how they show up in tests is very different. So if you’ve had an MRI and/or a lumbar puncture you can rest assured your healthcare team will have diagnosed correctly. Hope that helps.

Mel

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