Last reply 3 years ago
Another PIP post!

Lads, ladies, those not so ascribed, I am looking for hints and tips on filling in my PIP form. I know I don’t have to tell any lies or pretend anything because I deserve this money, but the form is scary and long and I know they want to “catch you out” at any given moment. Any words of advice?

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3 years ago

Yes, @kirstyscotland8 , get some professional advice to help complete the form. Use the Citizen’s Advice Bureau, or any local MS Support Groups…..

The application needs to be completed objectively, so a third party can be objective. But, it’s difficult for us as we’re “too close” to the problem.

3 years ago

I would suggest you make notes of what you are going to be writing in the form first Kirsty on a separate piece of paper and keep that for your reference.. also when filling out the form tell them if you can complete the task SAFELY and also does it take you longer to do tasks like climb stairs , so TIME. Do you need ASSISTANCE to help you do a task and also does doing any tasks cause you PAIN.. I was told these are the main things they need to know and some of the criteria will be Mobility, preparing food, washing, dressing, cognitive and toileting… But @stumbler is right get as much info as you can about the process from either citizens advice or phone an MS society and ask for help and make notes and have all your official paperwork with you too just in case they haven’t seen it.. Good luck and be prepared for a wait… let us know how you get on

3 years ago

The form is scary but I found the staff really helpful when I queried a few things on the phone. As we tend to ‘just get on with things’ it is easy not to realise that what we do on a daily basis is considered to the medical profession as using aids, such as having to sit down to get dressed because of balance, the chair becomes an ‘aid’ as you can’t perform that task unless you did so, and having a shower because if you had a bath you wouldn’t be able get out without help. You may never like having a bath but the fact you can’t get out of one if you did is a fact you need to put down as normally you would have that choice.
My application took 9 months and I had to have a medical, which worried me a lot as I thought they would try and ‘catch me out’ but the nurse was lovely and extremely helpful highlighted more areas where I am ‘disabled’ such as opening jars, which I ask my husband to do for me, but for the purpose of the application this means I need ‘help in the kitchen’, which all adds to the points score.

3 years ago

hi @kirstyscotland8. For my information,what means PIP ? thanks. Eric.

3 years ago

@ericg , PIP stands for Personal Independence Payment, a welfare benefit in the UK. 😉

3 years ago

Think of the days it feels worse, no need to fib, but don’t try to sound better than you are. it takes them month & months to sort you out so get it right first time. Good luck.

3 years ago

Hi @stumbler merci beaucoup !!

3 years ago

Hi @stumbler thanks !!

3 years ago

I totally agree with what Graham100 told you, I was thinking what I had been told when I needed to fill in that horrible long form.
Think of how you feel on the worst
days, I think a neurologist told me that!
Take care

3 years ago

Throwing in my 2 cents.. as it has been said before by Graham10 fill it out as though it’s your worst day ever,let em have it all as they are cold callous b*****d’s and they really really don’t care . You are better off going to your local MS society though, they will have people there who know what is what.
If you get turned down keep trying BUT . do not bother with a tribunal.. as I did .. and two YEARS later I got a hearing and lots of talking and shed loads of evidence and still got rejected.. I asked them if I had of got the decision would I of been back dated the two years? NO was the reply! They DO NOT back date. and I had wasted 2 years …

Just my 2 cents from MY own experience

best regards and luck


3 years ago

Oh I forgot to say ,, Take photos on your phone of every page you fill out, save it in its own file then you will have a copy of the form easily at hand



3 years ago

Re: earlier post, I waited 9 months from submission to receiving my first payment (including the medical test time) and it was backdated the whole 9 months. I received nearly £2,500 on the lower level award.this was last October. Good luck.

3 years ago

PIP is replacing DLA.. I’ll be facing a PIP form later this year.

I’ve put together a list below, I can definiting recommend the Benefits and Works guides and going to see the CAB, or local social sercivices and getting help.

As I mention below, COPY EVERYTHING.
Get as many bits of supporting evidence as possible.

Given that THIS, see paragraphs below, is all advisors are given as guidelines, you need to really spell it out for them, as it reads like something borrowed from Wikipedia!

Multiple Sclerosis
sclerosis (MS) is a chronic, progressive, degenerative disease,
characterized in the early stages by remissions and relapses in its clinical
course leading in some, though not all cases, to persisting and progressive
disablement. Destruction of areas of myelin (a substance surrounding nerve
fibres which enables nerve impulses to travel along the fibre) throughout the
brain and spinal cord is followed by scar formation [known as a “plaque”].
fibres eventually degenerate, leading to failure of transmission of
nerve impulses. The optic nerves (the nerves to the eyes) and spinal cord in
the neck region are most frequently affected.
Multiple sclerosis affects 30-80 people per 100,000 of population. The
incidence of the disease rises throughout the second decade of life and is at
its highest in the thirties. Slightly more women than men are affected.
The disease rarely begins in people aged over 65.
Care Needs and Mobility Considerations
The principal manifestations of MS a
re weakness of one or more limbs,
spasticity (muscle rigidity or pronounced stiffness), muscle fatigue,
unsteadiness of gait, and difficulties with speech. Tremor sufficient to
interfere with the use of the upper limbs may develop. Loss of sensation
may occur. Difficulty in bladder control is common, the person having to
rush to reach the toilet in time and often being incontinent.
As the disease progresses walking may become increasingly difficult either
because of weakness and spasticity or because of unsteadiness leading to
falls. This may be compounded by impaired vision and by weakness or
tremor in the upper limbs which make the use of walking aids difficult or
impossible. When walking, the severity of the muscle fatigue may result in
the person’s having to stop and rest frequently.
Short-term memory defects, impairment of speech, and mood swings are
features of the more advanced stages of the condition.
The person may ultimately become chair or bed-bound. If this stage i
reached there may be need for moving them frequently to prevent the
occurrence of pressure sores.
Duration of Need
The average survival of patients from the time of diagnosis is 30
years. The
average age at onset is 32 years, and so there is probably a slight reduction
in overall life expectancy. However, course and effects of MS vary widely
from one person to another and are unpredictable. Spontaneous remissions
of varying length are common particularly in the early years of the disease,
and in some instances appear to be life-long. Very rarely, multiple sclerosis
takes a very rapid downhill course. However, the most common pattern is
of frequently recurring relapses leading to chronic disability, dependency
and complications. This process may take 20 years or more. Although the
needs may change dramatically in the early years, if after two years there is
a persistence or increase in needs, it is unlikely that there will be further
Further Evidence
A medical re
port may be helpful where the needs over any period of time
are not clear because of the variable nature and progress of the disease.

These notes and links are for guidance only. Always seek proper advice when filling in claims or contacting departments:)J

DLA and Benifits UK only.. Also see Doc Excerpt From the Disibility Handbook.I’ve compiled some useful links specifit do DLA and benifts for those in the UK. The Goverment is has proposed changes to benifts replacing DLA with PIP’s Personal Independence Payments.. Time will tell on how much these changes affects us.

Stating mental issues such as stress, or loss of work, partners stress etc etc. may earn you points for DLA claims. Its hard to go through those ‘worst days’ if your feeling good but if they’re gonna come round again THATs when you need that extra bit of help.:) or renal or local council social workers are there to help, and sometimes Citizens Advice Bureau can be valuable:) Do NOT rely on one source.

As with all correspondence. Keep a copy. Its a good idea to draft on a ‘spare copy’ which you then use as a template for the final form to submit to DWP. You then have reference for when you go to tribunal. Or if you have to renew your claim.

On each copy of ‘supporting evidence’ write your name and NI number for reference, and if referring to them in applications use A B C or 1 2 3 on the form.

While some manage to fill in the DLA, and other forms alone, and receive successful applications, it does not do any harm to seek advice or read the resources & tips provided here.

Note, NEW PIP replaced DLA on 8th April 2013 for those age 16 – 64.

And from Benefits and Work:

The PIP Points System

The PIP SELF TEST from Benefits and Work

Notes and lists compiled by JW

MIND the Big Book of Mental Health and Benefits.

Invaluable. Benefits and forms explained with letter & form examples.

Annual publication and worth the costI ts £16 quid well spent.

Private organisation/support group that provides VERY useful info. Subscription for forum and document downloads (which can be kept) Worth the subscription.. In my opinion. JW

Age UK formerly Age Concern

Disability Rights – Publishers of the Disability Rights Handbook:


Carers UK

Gov info on DLA and benefits

Gov link to the Disability Handbook This document is used as a framework on DLA applications and states scientific facts of treatment only. It does not describe any patient experiences, emotions etc.

Direct Payments

As opposed to Central Government benifts such as Disability Living Allowance, Income Support and Attendence Allowance which come from the Government Department of Work and Pensions, Direct Payments come from your Local Authority. (Local Council)Direct Payments can be used for a number of things as agreed with social services, such as employing a PA/cleaner, or to pay for an agency worker.You should contact your local Social Services to be assesed for Direct Payments.

UK Gov list of available benefits for UK residents.

Working Tax Credit:

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