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becklawther
4 weeks ago

Hi Susan, I don’t have one of these pumps myself so wouldn’t know. Do you have MS nurse? You could talk to them or try contacting your neurologist for help. Sorry I can’t be more help.


highlander
4 weeks ago

Hi @susan_crosby_irwin
Welcome to the club!
I can’t help with the pump I’m afraid, do you have an ms nurse you can contact they should be able to assist, or whoever fitted the pump I would think they would be able to give you the right advice.
I would ask them.
Maybe @stumbler might have more advice.
Keep smiling.


peterfrancis
4 weeks ago

Hi @susan_crosby_irwin

I am not familiar with the Baclofen Pump, had no idea there even was such a thing, so unfortunately I’m unable to offer any assistance sorry.


peterfrancis
4 weeks ago

http://nbiacure.org/learn/living-with-nbia/what-is-a-baclofen-pump/

According to that a Doctor Programmes how much Baclofen the Pump delivers.


stumbler
4 weeks ago

@susan_crosby_irwin , Here’s the recommendations of NICE (about ½ way down the page, under “By intrathecal injection” :-

https://bnf.nice.org.uk/drug/baclofen.html


mlgilber1
4 weeks ago

I saw a doctor about the pump and she said they keep you in the hospital for a couple days to play around with the dosage. I know it’s automatically programmed and she said it can even be programmed to give a higher dosage at different times of day depending on when your spasticity is worse and there’s even a boost button on the remote if you need an extra boost of medication. Unfortunately I don’t know the exact dosages they typically use.

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