Last reply 2 months ago
A little backstory

I am Estefania Flores. I was diagnosed in 2011, the day after my 18th birthday but never had a relapse till 2014.
I missed so much school my senior year of high school, I had to do my senior project on MS because I didn’t have time to put anything together other than that. A girl in my class asked me if I was going to die from MS. It was like I fresh wound, I cried in front of the whole class because I was scared of what I had just gotten diagnosed with and I hadn’t really thought of the death aspect just yet. I wiped away the tears and finished my presentation. Eff you, high school bully.
I ignored symptoms of fatigue, headaches, mood swings, I just wanted to be a “normal” young adult. I stopped taking my medication and going to check ups, I was invincible I didn’t have anything wrong with me if I just ignored it.
2014, I had just gotten back from an amazing vacation in Costa Rica with my sister. I was back home getting ready for Fall semester of college and while I was looking up, I felt a sharp pain behind my eye. Living in this generation, I quickly looked up my symptoms. Everything lead back to, Optic Neuritis associated with MS. Kept pushing and ignoring my symptoms, started school as a Biology major. My eye gets significantly worse in three days, I go to my normal MD and he gives me eye drops for pink eye. I go to the ophthalmologist I’d seen awhile ago, learned Optic Neuritis isn’t something you see every day. He invited everyone into the room before telling me what is going on. I cry, scared. He tells me, I start steroid infusions immediately. Three days talking to chemo patients makes me feel like I’m an idiot for worrying, these are actual people who are dying of CANCER and I’m scared of MS? Surely I’m being a child about this. I call my specialist at UCSF, he’s AMAZING. Such outstanding bedside manner, so warm, welcoming.
I had to drop that semester because I had to drive to UCSF, 3 hours away from where I was living then. We have to redo all the tests because I refused the medication and it had been too long without being on anything. Still have MS. More steroids.
UCSF had a clinical trial for people who had had Optic Neuritis in the last six months. I gladly agreed, anything in the right direction for a cure. Every other month, two hour MRIs, double blind study, not so bad. Everything went great.
Im now back to 20/10, I had changed my diet and that might’ve helped also. I’ve also been taking Gilenya since October 2014 and feeling great. I really think a positive attitude is an immense help.
I lost my boyfriend in January, and right now it’s hard to stay positive and sometimes I feel like I might have a relapse at any time. Sometimes I’m not so diligent with my medication but I know I have to keep pushing, I can’t give up.
That’s me, having a pretty okay relationship with my MS, fatigue and headaches are rough some days and floaters scare me sometimes. But other than that, I’m okay.

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stumbler
2 months ago

Hi @eflores0227 and welcome to our exclusive club.

You’ve been through a lot for someone so young, but you seem to have the right mindset to manage this.

So, live healthily, eat healthily and, importantly, avoid stress. And then get on and live your life. 😉


vixen
2 months ago

Hello @eflores0227, I loved reading your story. But what a lot of emotional pain to go through at such a young age. Clearly though, you’re through the other side of that a lot stronger and more resilient. Maybe you should be the guest speaker at a school reunion! Keep up your sparkly outlook, stay strong and well xx


pulcherrima
2 months ago

Hi @eflores0227, thanks for sharing your story.
I was diagnosed on 21st of December in 2012 at the age of 19 and was like “woohoo, everywhere they are watching this dumb movie about ‘apocalypse by the Maya-calendar’ or something and I’m laying here in hospital and they just told me I had MS”.
Some days later, when I was back home, I looked at my mom and said: “well…leastwise now I know what I’m going to die of.” The we hugged and squeezed each other and were just crying.
So I totally know how you felt, when this crude girl asked you about if you’re gonna die. I would have cried, too and maybe not even finished my presentation, like you did.
You’re a really strong person, way stronger than your MS!
So… all the best to you – we will both make it!!! 🙂


potter
2 months ago

Try not to stress it makes your MS worse and can cause a relapse. You will meet someone who is your soulmate someday, your young and have plenty of time. You just need to focus on your happiness, health and well being right now. The dmt is slowing down the damage to your brain so you have to keep on top of it. I had two aunts that had MS when there wasn’t any treatment. I kind of knew what they had gone through so when I was diagnosed that is the first thing I asked for. I wanted to slow down this disease as much as possible. Your studies in college should be in a area where your job would require mostly desk work. My husband is a illustrator and writer and has worked at a desk his whole life. He is retiring this year and is in much better shape than his friends despite the fact he won’t exercise. His friends all had physical jobs such as postman, forest ranger and shop mechanic. They have problems with back, knees, feet and shoulders and had to retire early. I know you have a lot to think about and decisions to make but you are smart enough and strong enough to do it. Potter


peterfrancis
2 months ago

@eflores0227

Hello or Hola and welcome to the site.


rel12
2 months ago

Great Story!
Keep that positive energy. xo

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