Chair of Trustees



Thank you for the interest in becoming the new Chair. is a digital-first charity for people with multiple sclerosis (MS), particularly aimed at the recently diagnosed. Launched in 2009, has over 11,500 registered members and receives 25,000 visitors per month.


These are exciting times for The organisation is in the third year of a five year strategy with an aim to accelerate the development of the organisation before scaling back under a team of core staff and an empowered volunteer programme.


Having recently been awarded a fourth grant from the Wellcome Trust, the ‘Sustaining Excellence’ funding will run for three years from October 2016. It will provide with the resource to focus on developing sustainable income streams through its existing service – which will give the organisation stability as it moves away from a reliance on grant funding.


Our current Chair has recently announced his intention to step down following his three year term. We are now looking to appoint a new Chair with the opportunity to embed themselves in the work of the Charity in advance of the next round of board recruitment. is looking for an outstanding individual, suitably qualified and experienced to lead the Board and add value to the Charity in the achievement of its strategic objectives.



For further information on please see our accompanying ‘About’ document.

Role profile

Title: Chair


Remuneration: The role is not accompanied by any financial remuneration, although travel expenses and subsistence incurred will be reimbursed.


Board meetings: The Board meets four times a year in Central London. The Chair is also expected to have regular meetings with the Directors, and also represent the Charity at events and meetings with key stakeholders.


Term: The appointment will commence in 2017 for an initial 3-year term.


Time commitment: Approximately 1 to 2 days per month.



Purpose is looking for an outstanding individual, suitably qualified and experienced to lead the Board and add value to the Charity in the achievement of its strategic objectives.


The major focus in the next three years is supporting the management in delivering the organisation’s five year strategy.


Principal responsibilities

Strategic leadership

– Provide leadership to the Charity and its Board, ensuring that the organisation has maximum impact

– Ensure the organisation remains on track to meet the organisations strategy



– Ensure that the Board are working in the most effective way for the Organisation

– Develop the knowledge and capability of the Board

– Conduct annual discussions with individual Board members to review the effectiveness of the Board

– Ensure that the Board is regularly refreshed and incorporates the right balance of skills, knowledge and experience needed to govern and to ensure delivery of the organisations strategy and effective succession planning


Relationship with Directors

– Work closely with the Directors to give direction to Board policy-making and to ensure that meetings are well planned, meaningful and reflect the responsibilities of trustees

– Act as a channel of communication between the Board and Directors

– Ensure regular contact and meetings with the Directors, develop and maintain an open supportive relationship



– Support the organisations excellent fundraising track record

– Network and introduce new potential funders to

– Encourage fundraising through board members


External relations

– Network the Directors into organisations and individuals who might assist or support

– Network with potential future members of the Board


Person specifications


– Business experience and entrepreneurial spirit

– Experience of board governance

– Experience of operating at a strategic leadership level

– Experience of voluntary sector organisations


Knowledge and skills

– Strong leadership skills and the ability to motivate staff and the Board of Trustees

– Strong networks in the voluntary and/or entrepreneurial sectors

– Ability to support and encourage full and open discussions to enable the Board to reach agreement, summarise discussions, manage meetings efficiently and to time

– Financial management expertise and a broad understanding of charity finance issues

– Understanding of, and intention to meet, the legal duties, responsibilities and liabilities of a Chair



How to apply

If you wish to discuss this role further, please contact [email protected]