i finished my final infusion of lemtrada on thursday and i’ve never felt so bad in my life. My lips and nails are blue, my neck and face is swollen and my mood is absolutely awful and i can’t sleep or sleep. Does anyone know how long the recovery time is?
Lemtrada (also known as alemtuzumab or campath) is a disease modifying treatment (DMT) for highly active relapsing remitting multiple sclerosis. Lemtrada is given as an intravenous infusion (drip), often in two treatment courses, twelve months apart. Clinical trials have shown that Lemtrada reduces relapses by around 50% compared to a placebo.
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651 conversations about Lemtrada
And I’m feeling so crap, my walking is crap, my mood is crap, I don’t know what to do to help myself. Is this normal?
I am currently trying to decide which treatment to start after I stopped my Gilenya treatment. I have been on Gilenya twice once for 16mths then I stopped to try for a baby. When my baby was 4mths old I relapsed and was put back on Gilenya after my steroid treatment. I told the neuro that I didn…
Hey just got my blood test result for the jcv virus n am too high off a risk for tysabri. Absolutely gutted been an emotional wreck as this treatment would off fit in with my life as can be done at a local hosp. Meeting my ms nurse this afternoon to go over other treatment I know Lemtrada is one no…
Hi all! Hope you all well and in good health! Help! I can’t seem to find any thing on the internet and which specific blood and urine test are requested post lemtrada treatment? I recently had my 2nd round and am now changing over to have my bloods and urine test at my local GP surgery, which is …
Hi i am due to have lemtrada at addenbrookes in a few weeks. Due to the distance that i live away from the hospital i have to stay in the hostel provided. Does anyone know what they are like and have any tips?