Konnichi wa, – It is the weekend. Yay. V. important – I think – to try and distinguish the weekend when possible. It is all part of the routine that I and many others keep to stay sane. Mrs S is now officially on Easter hols so a very cheery mood all-round in mi casa. —R…

Ciao Ciao (in solidarity with our Italian friends), – Apologies for the lateness. 3 key things have happened at Chez Shadbolt 1- It is an amazingly sunny day near Oxford (UK) 2- We went for a 10km walk by the Thames and over some hills, it was utterly lovely 3- I forgot to eat breakfast so up…

Hi everyone, I’m new to this platform and just wanted to ask a quick question: has anyone ever experienced a loss of smell as a symptom and is that temporary or permanent? I did have a cold a few days ago but my nose isn’t blocked anymore just can’t smell or taste anything. (I am on Ocrevus t…

Good morning (home based) party people, – It is a su…

Great news for some of us – me included – is that (from a group of neuros on Twitter) at least one of them has an ocrelizumab patient that is normally sick, they haven’t deteriorated into an immunosuppressive mess. One Swallow does not make a summer, but it is hard to get hands o…

After watching C4 News last night Mrs S and I turned to one another, exchanged a look and decided to step it up a gear. She is immunosuppressed with mercaptopurin for Crohns disease. The more we can get done today and tomorrow the better. We live in a flat. Today I am picking up a 99.9% filtering …