Popular Topics

Here are some of the many topics being discussed by the Shift.ms community right now. Thousands of MSers are asking questions, sharing advice and helping each other make sense of MS. There might even be a conversation which changes the way you think about your condition.

@melissag

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melissag

Mavenclad

Hi all! I’m looking into changing from Gilenya to Mavenclad, and I’m just a bit confused! I’m seeing my MS nurse in a month to tell her what I’ve decided but I was just hoping someone here could help answer some questions in the meantime!    I originally really wanted Lemtrada, even though t...

@isaacson72

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isaacson72

Index finger twitch

Good morning (from the states), My index finger has been twitching uncontrollably for 2-3 weeks now. Every day, multiples times per day. I'm trying to rule out everything.... some things I know that can cause this are vitamin deficiencies (Mg, vit B, calcium) - I take all of those, so I don't be...

@Kinga

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Kinga

Lumbar Puncture and painful stiff neck?

I had a LP done 4 days ago and the pain in a neck when Im sited just got worse today. It's really stiff and hurts more when I move head or talk. Is it normal? Or should I see a doc? Im fine when I'm flat in bed but can't work or sit at all...I do drink a lot coffee and water etc After a LP doc tol...

@WendyHills

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WendyHills

Alcohol and cladribine

I have been quiet on this site for a while as I had to make a decision on what DMT to take and wanted to clear my head. I have highly active RRMS and this week I started on Cladribine I have not had any side effects or adverse feelings yet at all so I’m pleased about that I’m almost week one done ...

@amberzak

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amberzak

Can't put foot flat on the ground

Hi. So I'm on holiday and my mum and stepdad walk... a lot. Today was a long walk with a steep hill that had no time to rest as we were chasing for a train (which was 30 minutes late anyway). My legs barely held me up. I have a stick and that didn't help much either. I couldn't stand when we got...

@yuma

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yuma

Coping with metal taste on steroids?

Hi! I'm currently on methylprednisolone and ugh, I can never stand the metal taste. It's so awful not even being able to drink water without being disgusted! What's your method of dealing with the taste? I keep mints in my pocket and snack on lemons when I can. Anyone have their own favourites for ...

@Feloreena

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Feloreena

Slow recovery from Optic Neuritis?

Hi everyone, hope you are all doing well. :) I am interested to hear about people's experiences with Optic Neuritis, and in particular those who have had a slow recovery from it. My own story - I got an attack of Optic Neuritis in my left eye in June this year. It started off with some mild pain a...

@isaacson72

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isaacson72

MRI - with a cold

I've got my MRI in about 3 hours and I've been trying everything I can think of over the last week to get rid of the cold I managed to catch. It's not a bad cold, and all that's really left is some minor congestion and the nasal drip. But it's the drip that has me freaking out about the MRI. What...

@insomniacoffeelover

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insomniacoffeelover

arm feeling like a dead-weight

hi all, just in work here at the moment and having one of those horrible silent episodes that no one else can see but i can feel! i have persistent problems with my left arm from from shoulder to elbow and my wrist and hand. my arm basically feels like it had a cement ball and chain attached! jus...

@JasFromTas

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JasFromTas

UTI - antibiotics and steroids?

Hi Everyone! I'm currently traveling (in the USA) - just attended ACTRIMS/ECTRIMS which was amazing! I go back to Australia on Thursday. So question(and problem). I have my first UTI in 8 months. The last UTI I had triggered a relapse sending my EDSS from 4 to 6, so I'm not keen for a repeat perform...

@Chate-Patel

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Chate-Patel

Pip payment but no official comfirmation

Hello fellow MSer Is it normal to have received pip back pay and 1 months benefit into my account but not to have recieved an official letter from DWP confirming that I have been successful in my claim? I recieved payment mid Jan (pack pay?) then a payment in mid Feb (4 weeks benefit) from DWP P...

@leighlincoln

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leighlincoln

Black Seed Oil for Bladder

Hello from Queensland (been away a while with other health problems. I've been doing some reading and black seed oil seems to be cropping up a lot recently. Has anybody experience of using this for bladder problems It seems that it can be bought over the counter and isn't very expensive. Would ...

@emlaloula

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emlaloula

Who has 'Tightening' around Ankle?

A couple of days ago I read a post. It wasn't the topic of conversation but someone mentioned a 'Tightening' around their ankle. I stupidly didn't comment because it was 'off topic' and now can't find the post. I have been plagued with this for a year. I describe it as a vice like pain. In all ho...

@Angela351

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Angela351

MDMA made my MS go away for 5 hours

Hey all, just checking to see if anyone had the same experience. I took a small amount MDMA and I could do things I couldn't before. For about 5 hours I could stand long enough to have a conversation without having to find a seat. I could dance for an entire song. I was running up stairs and moving ...

@AdamFrampton

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AdamFrampton

Can I take Modafinil & CBD Oil?

Hi Everyone I am currently prescribed Modafinil for my fatigue but have recently had the opportunity to have Medical Marijuana. I have spoken to my MS Nurse concerning this and whether it would be ok to take both together or if I should stop the Modafinil? I know this is all very early stages but...

@Purplepenguin

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Purplepenguin

Strange sensation on front of neck/throa

Hi everyone, I have a new and rather odd symptom, which I have run past both my MS Nurse and physio this morning and neither of them have come across it before!! I have a strange sensation of pressure on the front of neck/throat that feels a bit like I'm wearing a scarf. It can be transient or las...

@pisces95

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pisces95

Icy Hot Sensation

About a week ago, I woke up in the middle of the night with both arms fingers to shoulders completely numb. I was able to get the feeling back after flopping around like a seal for few minutes and went back to sleep. The next day, there was a band of what I can only describe as an Icy Hot sensation ...

@sheetal

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sheetal

Legs Pain after bath

Hi, I am facing lot of the pain in both legs , numness after bath? I think whenever my legs come in contact of water that time I am facing that type of the pain. Anyone facing the same problem like me? what should I do for this problem?

@melibu

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melibu

Icy Cold Sensation down my face

Hi there, Just sitting at work at my desk tonight and had a really strange sensation like a glass of lce water was poured doen the left side of my face! From just under my eye, down my cheek to my jaw- only lasted about 5 minutes or so but now my face is all pins and needly and my left hand is real...

@emlaloula

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emlaloula

Forgetting to breathe. What is this?

A couple of times in the last week I've had a strange feeling. Like suddenly realising I've stopped breathing. Seems to happen when very fatigued, which makes me feel like my body is going to just stop. Like I'm falling into a kind of drunken state of unconsconsiousnesss. The breathing is new. The o...