Suspected MS, Awaiting Referral
Hello!
This isn’t a message I ever expected to write, but I’m grateful that this app exists and that I have the opportunity to share in what seems an exceptionally supportive community.
My name is Nicole, and in the last few days after an unexpected (and terrifying) trip to A&E with stroke-like symptoms, I was told by the consultant that an MRI scan had detected some abnormalities and that he suspected I may have MS.
At the moment I’m waiting to be referred to another neurologist for a second opinion, but I feel like my world has been turned upside down. However, I’m determined to put it on a new axis, one that still keeps my world spinning and keeps me living and enjoying my life with my husband and son to the best I possibly can.
Admittedly, I’m scared. I feel quite poorly at present, and there are parts of my day when I don’t think there will be a way through. I hope, though, that whatever the diagnosis, and whatever happens, I can journey along with you all here in finding acceptance and adapting to what looks like a new life for me. I am, however, hoping for a little advice for what seems to be the start of a long process before I have some answers.
Thank you x
Hi I'm really sorry this is happening, but if you have any questions or just want someone to chat to drop me a message ❤️
sorry to hear what you’re going through. I think the best think I can say is Don’t Panic! It takes time to get your head round it & understand how the disease affects your life. We all have different symptoms of our MS, & they can be very variable. Focus on gradually learning all about it & look at any healthy lifestyle changes you can make. You may be offered medication to reduce risk of relapse. Eligibility depends on how active your MS is & your MS team will advise you. There’s a lot of support in groups like this, & the MS trust & MS Society are good for information. Good luck with everything x