Worst comments from non MSers?
Ok, so we can sympathise and forgive other less-informed people when we talk about our MS condition and symptoms. Sometimes, however, insensitive comments can hurt. I've listed below a few I have experienced. What has been your experiences and how have you dealt with it?
You look great, you don't look ill ... (rather than asking me how I feel)
At least you don't have cancer!!!
Do you still have it?
On explaining some symptoms... me too!
Knotty xx
Nothing is going to happen to you, you won't have any problems with your MS. Why on earth would someone say that, you wouldn't have been diagnosed if you didn't have problems already. Do they imagine a doctor said to you during a check up "by the way you have MS". Potter
'You can be treated for it though can't you' And then when I explain that there isn't a cure...'but you take medication and surely they'd have a cure for it' Yeah sure there is I'm just making it up cos i like injecting myself. Oh and similarly to the cancer one when people grade and compare it to other conditions, for example 'look at so-so whose blind he does so well dealing with that, you're lucky compared to him'...so many times I've wanted to just scream yes I know that but my MS can affect my vision as well as most other parts of me at any time, so I have to live every day with that constant worry of when a relapse might happen and what it could be like whilst managing day to day symptoms - that's really lucky isn't it! So far I haven't done that though as my way of coping is to just try to avoid the conversation.