@kateeeeeeeee

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kateeeeeeeee

Relapse and lifestyle

When people are relapsing, what do you do lifestyle wise? Depending on capability and symptoms, how much do you push yourself to go to work and get going as normal? Or do you stop most things and lay low till it passes? I can’t work out if I’m making things worse and prolonging it when I keep trying to work. Quality of work is very low haha

NorasMom

@NorasMom

For the first several decades, I just kept going but made a point to rest more at home and let the house and yard work go. My work slowed down a bit, and I'd call off sick more than my office preferred, but I'd use those days to just sleep without the husband and kids around. The last couple years, I changed jobs several times and then greatly reduced my hours. Once I realized I was missing more days than I was there, I quit entirely and went on gov't Disability. You're really the only one who can make this decision, because it depends entirely on the symptoms you're having and the sick leave that's available to you. Is going to work putting your life or other people in danger? Then stay home. Are you able to do the work but do it a little slower? Consider going in or trying to work a shorter day. How many lives would be impacted if you make a mistake at work? A lot depends on the type of work you do. A receptionist who slurs her speech needs to stay home. A construction worker whose hands shake while holding power tools needs to stay home. If you have to drive yourself to work and can't see clearly, stay home. After my condition worsened and I "retired", I did wonder if I'd pushed myself too hard those last couple years.

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kateeeeeeeee

@kateeeeeeeee

Thank you @NorasMom for sharing. You’re right it is tricky with so many variables. I quit my youth crisis refuge night job (mobility issues), but kept my at home social work project job. The at home job is the one where I can keep pushing through during majority of relapses but not sure if switching off for a couple of days a week would be better long term or if it wouldn’t make a difference. I guess I will can just try it and see! I don’t have sick leave so will poorer regardless. I’ve had numerous relapses over and over this past 12 months, lots of steroids.

Katya

@Katya

I've just retired but I was recently working in high level security. I would generally push through it unless my legs were affected. But this isn't always a good thing. We should rest really but rest and I don't get along 😂 I also have horses and a small animal sanctuary so I have no choice but to go see to them. Again unless I cant walk..in which I stay home and I get help in.

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jamoranto

@jamoranto

@norasMom thank you for the read. You always get me thinking. Thank you. Best Jorge