Help others: Sign up to an MS register
https://www.youtube.com/watch?v=s10osAwugO0
BREAKING: Why signing up to an MS Register is crucial during COVID-19
We have a slightly different MS Reporters episode for you today: a call to action โก๏ธ MS Reporter Dom catches up with Dr Richard Nicholas, Clinical Lead of the UK MS Register ๐ Richard updates us on the latest information about the Register: how this data initiative can give us a more accurate understanding of COVID-19 outcomes among MS patients; who should be completing the Register (answer - everyone with MS); and some very positive insights on MSer COVID-19 outcomes based on the UK Register data so far.
Please do sign up to the UK MS Register if you are eligible to do so. The survey is very easy to complete, and there is an urgent need to broaden the evidence base on people with MS during this pandemic. Beat the fear with facts. If youโre UK-based and living with MS, please add your data to the UK MS Register now ๐ https://ukmsregister.org/
Further action:
If you live in Germany, France, Australia, New Zealand, Sweden (and many other places) the MS International Federation has a growing list of global COVID-19 and MS data initiatives, with new studies coming online all the time. Check out the list and sign up to these MS Registers in your country here ๐ http://tiny.cc/vv1lmz
The MS International Federation and MS Data Alliance have established COVID-19 & MS: Global Data Sharing Initiative. Please share widely ๐
More COVID-19 & MS reading:
๐น MS International Federation - Global advice on COVID-19 for people with MS ๐ https://www.msif.org/news/2020/02/10/...
๐น Have MS and live in the UK? Join the UK MS Register Study now and help provide a more accurate picture for research - we need you ๐ https://ukmsregister.org/
๐น The MS Selfie microsite hosts Q&As specifically for people with MS. Add your question here ๐ http://tiny.cc/vf0xlz
๐น MS Reporter Dominicโs blog on Shift.ms - An โMSers guideโ to share the facts and dispel myth and worry here ๐ https://bit.ly/3cPxHPn
๐น MS Society - Statement from MS Society medical advisors giving helpful, practical advice on COVID-19 Coronavirus, kept under continual review here ๐ http://tiny.cc/ek0xlz
๐น MS Trust - Great advice for MSers on what the virus is, risk and prevention here ๐ http://tiny.cc/nl0xlz
๐น NHS website - for clear information on symptoms, transmission and what to do if you think you might have Coronavirus here ๐ https://bit.ly/2TMdu5M
๐น Guidance from the Association of British Neurologists on the use of DMTs during Coronavirus epidemic (info for healthcare professionals and MSers) here ๐ https://bit.ly/38Lssx5
Do you still have queries about Coronavirus and MS? Please let me know.