@SJ1990 

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SJ1990

Coming off gilenya?...

Has anyone come off gilenya?? I've been on it for 4 years and they want to take me off it now and switch me back to tysabri due to reactions from it. I really want to have a break from medications and see if I can treat it naturally but have been told that symptoms/relapses can come back with a vengance after coming off gilenya and they want to overlap and put me back on tysabri. I'm slightly terrified...just wanted some advice if anyone has been through this...
@bee1

Yes I came off it a few yrs ago and had nothing for 3 yrs. just coming out of a relaps since March 2019 really struggling. Think long and hard damage can’t be reversed

@SJ1990

@bee1 oh wow, do you mean you had no relapses etc or you had no medication for the 3 years? Sorry to hear you are struggling with a relapse, wishing you a quick road to recovery. I am thinking very hard but I just want to know what my options are. I have tried different meds for 6 years and just want to see how I can manage naturally, especially because of the nasty side effects of the meds. If it doesn't work I'm happy to try meds again. Thank you for your experience. It's nice to hear you had no nasty side effects when coming off gilenya x