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@Robfowkes23 

Last reply

Robfowkes23

Dealing with flairs

Im just after a bit of reassurance... I started Tysabri in January after suffering a brainstem relapse in November.. Things are improving but my symptoms keep flairimg without obvious triggers. Will things improve long term. Its almost unbearable when it happens and im sick of resting.
First posted on the Shift.ms app
3
@ruari
@ruari
 

Sorry to hear that. My neurologist said it can take a few years for the body to get over a relapse. I’m hoping the symptoms eventually ease off, but they just keep coming back.. Good days and bad days. Im not sure what symotoms you have but i get tingling in my right hand and sometimes it gets really bad and feels heavy. Thats when im tired and have eaten poorly. I used to get lermits sign quite bad but ive not had that for a while now. So i do think things come and go. A lot of people ive spiked to with MS said that things do eventually pass. Good luck. Hang on in there.

1
@ruari
@ruari
 

Just looked up brainstem relapse. Looks like I had that too. I had double vision. That was my first attack in September 24 that lead to my diagnosis in jan 2025, started Kesimpta April 25