@Midge204 

Last reply

Midge204

Dismissed by Neurologist.

Hello, I am 56, I have been having symptoms of MS thst come and go for years now: fatigue, intermittant blurred vision, flashing lights, pain moving eyes, diagnosed multifocal choroiditis & panuveitis in 2020, recent diagnosis optic neuritis during eye test, bladder problems- incontinence, trouble with balance, dizzyness, slurring words, vertigo coming & going, tinnitus, trouble walking, feeling weak & arms & legs very heavy, hand, arms & leg spasticity, a zapping pain along spine & upper back, like being electrocuted, memory problems, restless legs. Had stroke ruled out, bloods normal, ultrasounds bladder normal, was referred to Neurologist January. He found weakness all over, couldn't stand upright when closed eyes, fell twice. Was told not MS as 20-30 year olds have it not 55 year olds. Very dismissive, he reported back to Gp thinks its anxiety related!! Am now questioning if it could all be in my head as he suggests, feel angry, upset, not listened to and dismissed. I honestly feel something is wrong, been saying to Gp, havent felt right for 4 years. Neurologist ordered an MRI, to rule out possibility of previous stroke. Results came back as normal for my age.(???) Has anyone had this problem? Don't know what to do next. Made to feel like a hyperchondriac and time waster by Neurologist, so dismissive it was awful. Read when got back from appointment people can get late onset MS, so he didnt tell me the truth about it being just 20-30 year olds affected. Optician writing to my Gp to refer me to hospital re eyes. Am getting worse with fatigue, literally cannot do anything without feeling completely exhausted afterwards. Can anyone relate to being dismissed like this? Misdiagnosed? A "Normal for age" MRI? I have read it is difficult to get a diagnosis over 50. Any thoughts would be appreciated! Thank you.
@AndreaG

@Midge204 I think you have suffered a bout of medical gaslighting, being a woman of a certain age, etc, etc. Get another opinion. I know it seems like a mountain to climb. Ask your GP to refer you somewhere else. It took me 8 years to get my MS diagnosis, which eventually happened when I was 52, and yes I had a similar experience to you. You can have a "normal" MRI, mine was but a neurologist eventually found a tiny lesion on my spinal cord. Lesions didn't appear on my brain until I had had two further relapses.

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@Midge204

Thank you for your reply AndreaG. I will get in touch with my GP. I hope he doesn't say the Neurologist dismissed MS and he agrees. Leaving me in nowhere land. Can I demand a second opinion/ask to be referred to someone else?

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