Hi all! My name is Edward. I am new here but not new to MS. I'm 35 and have had this MS since 1996. At that time I was too small and did not know about my problems. I lived as usual until 2019 and I lived with all these problems, I thought it was normal. But at the beginning of 2019, my health is deteriorating very quickly. I went to the doctor, and he sent me for an MRI, and then he said that it was multiple sclerosis and nothing would help me. I myself found and started buying Ocrevus. And MS stopped breaking my health. My education is Marine Navigator. I have been working on ships since 2007. And even after I was diagnosed with multiple sclerosis, I continued to work as a sailor until the end of 2022. I have been working to make money from Ocrevus infusions for the last 4 years only. As of December 2022, I stopped working as a naval officer for health reasons. The biggest problem is that I can't apply my knowledge and experience ashore and keep making money. I have a wife and an 8 year old daughter. I know a bit about computer hardware and software and even took the CompTIA A+ course and passed both exams. But anyway, I still can't get a single job related to computers where I don't have to work hard and stand on my feet. I am Ukrainian and have been in the UK for 7 months now. I can't get a job here, my car is completely broken, until June of this year I need to find another place in the UK where to go with my family, and I can't go back to Ukraine, there's nothing left. I apologize in advance. I'm tired of keeping it all to myself.
Hi Eduard! Just thinking out loud here but if you’re an experienced sailor, can you help train other to-be sailors? At some educational facility or school or something like that?
Hi Edward, Sorry to hear this. You have been through a lot and my thoughts are with all the people of Ukraine at this terrible time. Perhaps these links may be useful: Careers with Disabilities: https://www.careerswithdisabilities.com Disabled Workers Cooperative: https://www.disabledworkers.org.uk EmployAbility: https://www.employ-ability.org.uk Evenbreak: https://www.evenbreak.co.uk/en Jobs4Disability: https://jobs4disability.com Podium (offers skilled disabled people the chance to work from home): https://marketplace.appbytap.com