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@Applecake 

Last reply

Applecake

Worried

Hi there I am new, a worried 57 year old woman ! I have not been formally diagnosed with anything but am having weird symptoms and sensations . I am a nurse and am convinced I have MS. My Doctor is not convinced. Recent tests results are raised CRP and ESR Low B12 but not low enough to treat! Low Vit D Repeated bloods show normal CRP a d ESR I have tingling and numbness in hands and feet but not all the time , tired and sore shoulders, hips, muscle and joint pain . I feel shaky and this makes me anxious, have lost my confidence and don't want to socialise . Thanks Karen
7
@lauraforde
@lauraforde
 

I'm not a medically trained person so not too sure of the terminology used. But it sounds similar from my short experience that you've had a neurological episode which has caused your symptoms but your neurologist is not at the stage where she/he can diagnose. I went through this process for 12 months and when I was well was diagnosed and put on medication. It was a very stressful time and I felt like my life was on hold. I feel better now and I tried to use my time to reflect on my relationships with my family and friends. You need to do whatever your body is telling you to do, both physical and mental. It will pass. I sat and wrote little stories for my kids and did word searches to create some kind of "other life" . It's ok not to be ok sometimes

@ItsMewithMS
@ItsMewithMS
 

Does your brain or spinal MRI show lesions? That is typically what leads to a confirmed diagnosis- I understand that sometimes it is a battle to have the order written to get the MRIs and get them read but getting a diagnosis and starting treatment is important. I never really have had much pain or joint pain directly from my MS...more from my messed up gait due to my MS while my husband had joint and back pain due to Lyme disease. As a nurse hopefully you can pull together the case to get in the MRI tub...