Last reply 11 months ago
World turned upside down

HI,
I was diagnosed in February this year and i am very grateful to the Doctor who saw me (Not my Usual Doctor) as she recommended i had a nerve assessment test and i was seen by a Neurology Doctor whilst there at the hospital ! 13 blood tests and a Lumber Puncture and two scans to then be told i have progressive MS. i feel the diagnosis should have given 2 years ago when i had drop foot (symptom of MS)
I struggle though as i get very frustrated at how little i am able to do these days compared to two years ago when i was working as a housekeeper in a care home and now i have to accept that i can’t clean my flat and have a cleaner come in. I have gone from using my walking stick to a walker and just recently got a mobility scooter which gives me a little of Independence so no longer stuck at home 24/7.
One positive thing that has happened is i’ve joined an MS group which i go to on a Monday and meet fellow sufferers and i am learning to knit,something i haven’t done for a long while along with Spanish.

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wobbler
11 months ago

Hi @tilly …. you are doing the right thing by staying positive and seeking out the things that you can still do… I really miss riding my motorbike but am getting better on the piano!
Be lucky!


stumbler
11 months ago

Hi @tilly and welcome.

Your story about your journey isn’t that unusual, unfortunately. But, I’m pleased that you’ve managed to find some camaraderie with fellow MSers.


vixen
11 months ago

Hi there @tilly. Was a stroke of luck that you saw a different doctor, even though it has led to this diagnosis. Do you still have foot drop? I have posted a few times (you can use the search box) recently about the FES machine, is that something you’ve looked into? Stay well x


tilly
11 months ago

@vixen
Not heard of a fes machine but i will definetely look into it.
Thanks

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