Last reply 11 months ago
World turned upside down

I was diagnosed in February this year and i am very grateful to the Doctor who saw me (Not my Usual Doctor) as she recommended i had a nerve assessment test and i was seen by a Neurology Doctor whilst there at the hospital ! 13 blood tests and a Lumber Puncture and two scans to then be told i have progressive MS. i feel the diagnosis should have given 2 years ago when i had drop foot (symptom of MS)
I struggle though as i get very frustrated at how little i am able to do these days compared to two years ago when i was working as a housekeeper in a care home and now i have to accept that i can’t clean my flat and have a cleaner come in. I have gone from using my walking stick to a walker and just recently got a mobility scooter which gives me a little of Independence so no longer stuck at home 24/7.
One positive thing that has happened is i’ve joined an MS group which i go to on a Monday and meet fellow sufferers and i am learning to knit,something i haven’t done for a long while along with Spanish.

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11 months ago

Hi @tilly …. you are doing the right thing by staying positive and seeking out the things that you can still do… I really miss riding my motorbike but am getting better on the piano!
Be lucky!

11 months ago

Hi @tilly and welcome.

Your story about your journey isn’t that unusual, unfortunately. But, I’m pleased that you’ve managed to find some camaraderie with fellow MSers.

11 months ago

Hi there @tilly. Was a stroke of luck that you saw a different doctor, even though it has led to this diagnosis. Do you still have foot drop? I have posted a few times (you can use the search box) recently about the FES machine, is that something you’ve looked into? Stay well x

11 months ago

Not heard of a fes machine but i will definetely look into it.

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